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BIKE FOR KAM

COURTNEY B., 27 岁 graphic designer 来自 Detroit, United States

35评论 · 4 · May 3, 2012

342

COURTNEY B - Urban Outfitters Snakeskin Pants, Thrifted Leather Boots, Urban Outfitters Beanie, Vintage Ankh, Vintage Middle Eastern Necklace, Thrifted Leather Belt, Thrifted Harley Davidson Shirt, Bike For Kam - BIKE FOR KAM
HYPE 342
  1. leather boots

    thrifted

    salvation army

    , in Leather Boots
  2. ankh

    vintage

    ann arbor, mi

    , in Jewelry
  3. middle eastern necklace

    vintage

    ann arbor, mi

    , in Necklaces
  4. leather belt

    thrifted

    salvation army

    , in Leather Belts
  5. harley davidson shirt

    thrifted

    salvation army

    , in Shirts
  6. BIKE FOR KAM

BIKE FOR KAM
BIKE FOR KAM
BIKE FOR KAM
BIKE FOR KAM
BIKE FOR KAM
BIKE FOR KAM
BIKE FOR KAM

Today, I'm wearing this cyan bracelet from my friend's charity, Bike for Kam. Kam is afflicted with HIBM (Hereditary Inclusion Body Myopathy) which is a rare genetic disorder that causes progressive muscle wasting and weakness. The weakness and severity can vary from person to person. In some, weakness in the legs is noticed first. In few others, the hands are weakened more rapidly than the legs, but in all cases HIBM has the potential to take a patient to near quadriplegic state. The pharmaceutical companies have not "adopted" this disease because it provides little financial incentive for the private sector to make and market new medications to treat or prevent it.

Please donate! 100% of your donations will go to HIBM research. They are currently at just over $8,000 of their $40,000 goal.

More looks by COURTNEY B.

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评论 (35)

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Andre Judd
just gorgeous:)!!!!!!!!
0 · reply ·
Loren♠  ♡
waw, love it ! this necklace is awesome!
0 · reply ·
Emilia  Hearn
you're just so cool.
0 · reply ·
Aaron Galanza
love your outfit!! <3
0 · reply ·
Grace Ng
obviously awesome!
0 · reply ·
Emma Jopasnyt
Love love love the look! The pants are so nice.

I read your blog yesterday and then spent the whole evening reading Kam's blog. It left such a strong effect on me.
0 · reply ·
Jhai Gonzales
pretty!! love your boots!
0 · reply ·
Megan Flockhart
love this :D
0 · reply ·
Billie Blohm
I want this entire outfit...you are dope-city girllll...love love!
0 · reply ·

  

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