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Look by Jana Wind
343

BIKE FOR KAM

May 3, 2012 · 35 · 4

COURTNEY B - Urban Outfitters Snakeskin Pants, Thrifted Leather Boots, Urban Outfitters Beanie, Vintage Ankh, Vintage Middle Eastern Necklace, Thrifted Leather Belt, Thrifted Harley Davidson Shirt, Bike For Kam - BIKE FOR KAM

BIKE FOR KAM
BIKE FOR KAM
BIKE FOR KAM
BIKE FOR KAM
BIKE FOR KAM
BIKE FOR KAM
BIKE FOR KAM

Today, I'm wearing this cyan bracelet from my friend's charity, Bike for Kam. Kam is afflicted with HIBM (Hereditary Inclusion Body Myopathy) which is a rare genetic disorder that causes progressive muscle wasting and weakness. The weakness and severity can vary from person to person. In some, weakness in the legs is noticed first. In few others, the hands are weakened more rapidly than the legs, but in all cases HIBM has the potential to take a patient to near quadriplegic state. The pharmaceutical companies have not "adopted" this disease because it provides little financial incentive for the private sector to make and market new medications to treat or prevent it.

Please donate! 100% of your donations will go to HIBM research. They are currently at just over $8,000 of their $40,000 goal.

Show all comments »

Jesuswannatouchme .
yaaaaaaaaay!
i'm in love with your snakeskin pants!
great look!
love your style!
<3
0 · reply ·
Jackie Groffman
I love your look! The pants and boots are awesome. I wish I could afford to help your friend. <3
0 · reply ·
Ashlei Louise .
That's so sad! I actually watched an MTV special on someone who has this. I wish I had my heart left! :( Also, love your look as always!! <3
0 · reply ·
Georgia Green
Always love your jewellery so much !
0 · reply ·
Nha_ IQlowbeth
this so great look, you are gorgeous <3
0 · reply ·
Loren♠ ♡
waw, love it ! this necklace is awesome!
0 · reply ·
Emma Jopasnyt
Love love love the look! The pants are so nice.

I read your blog yesterday and then spent the whole evening reading Kam's blog. It left such a strong effect on me.
0 · reply ·
Billie Blohm
I want this entire outfit...you are dope-city girllll...love love!
0 · reply ·

  

Items in this look

2
Leather Boots
Thrifted in Leather Boots
4
Ankh
Vintage in Jewelry
5
Middle Eastern Necklace
Vintage in Necklaces
6
Leather Belt
Thrifted in Leather Belts
7
Harley Davidson Shirt
Thrifted in Shirts

Brands in this look

Urban Outfitters

Urban Outfitters

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