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Look by Ashley Joncas

BIKE FOR KAM

によって COURTNEY B., 29 歳 graphic designer から Detroit, United States

35 コメント · 4 · May 3, 2012

343

COURTNEY B - Urban Outfitters Snakeskin Pants, Thrifted Leather Boots, Urban Outfitters Beanie, Vintage Ankh, Vintage Middle Eastern Necklace, Thrifted Leather Belt, Thrifted Harley Davidson Shirt, Bike For Kam - BIKE FOR KAM
HYPE 343
  1. Leather boots

    Thrifted

    Salvation army

    , in Leather Boots
  2. Ankh

    Vintage

    Ann arbor, mi

    , in Jewelry
  3. Middle eastern necklace

    Vintage

    Ann arbor, mi

    , in Necklaces
  4. Leather belt

    Thrifted

    Salvation army

    , in Leather Belts
  5. Harley davidson shirt

    Thrifted

    Salvation army

    , in Shirts
  6. BIKE FOR KAM

BIKE FOR KAM
BIKE FOR KAM
BIKE FOR KAM
BIKE FOR KAM
BIKE FOR KAM
BIKE FOR KAM
BIKE FOR KAM

Today, I'm wearing this cyan bracelet from my friend's charity, Bike for Kam. Kam is afflicted with HIBM (Hereditary Inclusion Body Myopathy) which is a rare genetic disorder that causes progressive muscle wasting and weakness. The weakness and severity can vary from person to person. In some, weakness in the legs is noticed first. In few others, the hands are weakened more rapidly than the legs, but in all cases HIBM has the potential to take a patient to near quadriplegic state. The pharmaceutical companies have not "adopted" this disease because it provides little financial incentive for the private sector to make and market new medications to treat or prevent it.

Please donate! 100% of your donations will go to HIBM research. They are currently at just over $8,000 of their $40,000 goal.

More looks by COURTNEY B.

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Show all comments »

Jesuswannatouchme .
yaaaaaaaaay!
i'm in love with your snakeskin pants!
great look!
love your style!
<3
0 · reply ·
Jackie Groffman
I love your look! The pants and boots are awesome. I wish I could afford to help your friend. <3
0 · reply ·
Ashlei Louise .
That's so sad! I actually watched an MTV special on someone who has this. I wish I had my heart left! :( Also, love your look as always!! <3
0 · reply ·
Georgia Green
Always love your jewellery so much !
0 · reply ·
Nha_ IQlowbeth
this so great look, you are gorgeous <3
0 · reply ·
Loren♠ ♡
waw, love it ! this necklace is awesome!
0 · reply ·
Emma Jopasnyt
Love love love the look! The pants are so nice.

I read your blog yesterday and then spent the whole evening reading Kam's blog. It left such a strong effect on me.
0 · reply ·
Billie Blohm
I want this entire outfit...you are dope-city girllll...love love!
0 · reply ·

  

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